Friday, Leiah (my oldest) came home from school limping. The aid told me that someone tripped her (accidentally I hope) and she was crying a lot, but they didn't know where she was hurt. I was bit upset.
So, I checked her over she looked fine, she wasn't crying or really complaining about anything hurting. Saturday she was limping still, but not as bad. Sunday morning while my husband was changing her into her church clothes, he was looking at her ankle again. He was in their room a long time, and when he came out he had a serious look on his face. He laid her on the floor and made her very straight and we realized for the first time that her left leg is 1/2 inch longer than her right.
I noticed that she always put her full weight on one leg, and the other was always slightly bent, but I just thought that was her thing. Nope. Matt rigged up her shoe with a thicker sole and she did walk much better. Rather than take her to a regular doctor, we are taking her to a chiropractor today to get an x-ray. Children with trisomy 9 tend to have problems with joints dislocating, and it could be that her hip is out of place. (I would think she would be in a lot of pain though) I'm afraid a medical doctor would want to break the leg and then work on it.
Anyways, that's what I'm about to do- I dread it a lot- she totally freaks out when people touch her :(
***Edited to add: I went to the chiropractor and he said that her hip was rotated, meaning I guess that it's out of line. He said she needed a pediatric orthopedic specialist. He was quite angry that her pediatrician had not noticed this before, as am I. He (the chiropractor) even said this should have been identified at day one of her life. The whole time I have been the one to suggest things to the pediatrician, voicing concerns, pointing out problems etc. He is very laid back and easy going and I like him- he is a good Christian man, but, he has overlooked a lot of things. I am very upset that he didn't do more for Leiah as a baby.
This is so frustrating. Since her birth we've been to the pediatric heart specialist, the pediatric eye doctor, a developmental specialist, a pediatric neurosurgeon, a geneticist, and now we need the pediatric orthopedic, AND, we'll eventually need to get an ultrasound of her kidneys. I am thankful that she is doing so well, but this makes us realize even more that she needs some very intensive help.
We've decided to take her out of the public school and do something better. I request prayers for wisdom and guidance because I feel like I am in the dark. For 5 years now, we've been trying to put the pieces together ourselves, and now it all comes together and the 'if onlies' start. If only we had known before we could have...
But at least we do know now. I just need a lot of help because this is scary. Thanks.